Thank You for Being Part of ATHN Data Summit 2024
ATHN Data Summit 2024 was Data Driven • Research Focused as we welcomed physicians, clinical teams, data managers, public health experts, and others from the blood disorders community. Thank you for your contributions—sharing knowledge, driving discovery, and celebrating progress. We look forward to seeing you next year!
Special Thanks to Dr. Uché Blackstock
We were excited to welcome New York Times best-selling author, speaker, and physician Uché Blackstock to ATHN Data Summit 2024. Thank you, Dr. Blackstock for sharing your personal and professional insights on barriers to care and racism in medicine with our community.
Data Driven • Research Focused
ATHN Data Summit 2024 provided an opportunity for another great in-person event promoting data-driven research on behalf of the blood disorders community. Thank you to all of our presenters, exhibitors, and participants for making this year’s event a big success! Here’s a recap.
Agenda Highlights
Note: All times shown are Eastern time (ET).
Topics: ATHN 101, Report Building Using Your Data, ATHN Transcends Study Forms, HCP Administration
Data Manager Networking Session
Breakfast – 7:30 a.m.
Opening Remarks – Crystal Watson, ATHN President and CEO
Barriers to Care and Research – Structural and Individual Racism
Introduction and Shared Understandings
Presentations and fireside chat featuring special guest speaker Dr. Uché Blackstock
Q&A
ATHN Research – Hemophilia
ATHN Transcends: PUPs Arm and ALTUVIIIO® Module
ATHN Transcends: INHIBIT Module
Q&A
Lunch – 12:00 p.m.
ATHN Research – Hemophilia (continued)
ATHN Transcends: Hemophilia Gene Therapy Outcomes and HEMGENIX® Module
ATHN 7: Final Results and research on Emicizumab and Females with Hemophilia A
ATHN Transcends: Hemophilia Natural History Arm
ATHN Transcends: Coagulation Factor IX (Recombinant) GlycoPEGylated Module
ATHN Office of Public Health Initiatives Updates from the Field
HTC Regional Spotlight
Hemophilia Alliance Update
National Hemophilia Program Coordinating Center (NHPCC) – Using GIS to Improve Access to Care
News and Case Studies from the CDC Community Counts Project
ATHN Leadership Awards
Networking Event – Atlanta Botanical Garden 5:30 p.m.–8:30 p.m.
Breakfast – 7:30 a.m.
Opening Remarks – Tammuella Chrisentery-Singleton
ATHN Research
ATHN 12: ATHNdataset HAD Pilot Project Final Results
ATHN Transcends: Glanzmann Thrombasthenia Module
Plasminogen Deficiency: Documenting Treatments and Outcomes
Von Willebrand Disease Treatments: Looking into the Future
Q&A
ATHNdataset – Real-World Evidence Generation
ATHNdataset Projects
Q&A
Closing Remarks – 10:45 a.m.
Physicians Think Tank (by invitation only) – 11 a.m.–3 p.m.
Thank You
As always, we are grateful for the generous contributions and support from the ATHN Industry Consortium and Community Partners.
Thank you
to the ATHN Industry Consortium
Thank you
to our Community Partners
For any questions about the ATHN Data Summit, please contact support@athn.org